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Friday, March 24, 2017

Chronic Morgellons Scalp gets a medically recognized name.

If you discount the alluded racial bias, this sounds like a part of what we have come to know as the scalp breakout condition common to Morgellons and it has a name!

The article I reference below is from a medical journal and states the alopecia (hair loss) as

I am slowing hair loss dramatically and my scalp conditions have resolved. 

The similarities described in the condition outlined below are stikingly familiar to those experiencing symptoms of Morgellon scalp.

Maybe these conditions are not one in the same but I've bolded the similarities to what Morgellons sufferers go through.

Here's where it gets really cool:

Newer pathologic hair findings include: pigmented casts,black dots, and "3D" yellow dots . Newer associations include: keratitis-ichthyosis-deafness syndrome, Crohn disease and pyoderma gangrenosum. Older associations include arthritis and keratitis.

Are you ready for the name?

Say the following 5 times quickly:

Folliculitis et perifolliculitis capitis abscedens et suffodiens

"Folliculitis et perifolliculitis capitis abscedens et suffodiens is a rare disease of unknown etiology. It is a suppurative process that involves the scalp, eventually resulting in extensive scarring and irreversible alopecia. The condition is also known as ‘acne necrotica miliaris’ or ‘Proprionibacterium’ folliculitis...

The clinical picture is determined by fluctuating painful fistule-forming conglomerates of abscesses in the region of the occipital scalp. 

The cause of scalp folliculitis is not well understood. It is generally considered to be an inflammatory reaction to components of the hair follicle, particularly the micro-organisms.

These include: bacteria (especially Propionibacterium acnes, but in severe cases, also Staphylococcus aureus), Yeasts (Malassezia species) and mites (Demodex folliculorum).

The initial histopathologic finding is an exclusively neutrophilic infiltration followed by a granulomatous infiltrate. The treatment of the disease is usually difficult and often disappointing.....

The main reason is considered to be the disordered keratinization and further occlusion and accumulation of keratin at the hair follicle.

After a dilatation followed by rupture, not only a granulomatous inflammatory process accompanied by the attraction of gigantic cells, partially phagocyting the keratin masses are induced in the hair follicle, but also an inflammatory bacterial process derived from a superinfection, most frequently caused by Staphylococcus aureus and Staphylococcus epidermidis, which are considered to be the main factors in the chemotaxis of neutrophils."

Now for the treatment (not cure) and its a doozy....

"Successful treatment with Isotretinoin 1 mg/kg body mass could be achieved only after regular systematic administration in the course of 3–4 months.

Eruptive purulent form of the disease, has been controlled with combination therapy: systemic antibiosis with metronidazole and clindamycin, dermatosurgical removal of single nodular formations, and isotretinoin 1 mg/kg body mass for 3–5 months."

I will be honest, the treatment sounds almost as bad as the condition.

Plus this is similar to just one aspect of Morgellons.

Many with the Morgellons condition experience healing in the scalp afterward a short period of time and treatment with antifungals and antihelmintic drugs. 

There's also a cancer scare statement contained within this documented scalp condition so be prepared. It could be suggested at any time by your doctor that you should treat with chemo and radiation. Dont fall for it. We all should know better by now.

At least we have a starting point and a name (holy heck and how) and medical journal references.

You can bring it to your doctor and see if he can pronounce it.

Be prepared for the doctor to place emphasis on the disease affecting men of African-American or African-Caribbean descent.
So you may have to bring the second article that indicates other races.


Here it acknowledges "but the condition also has been reported in other races and in women. "

And one for good luck...


The drug used to treat the condition, Isotretinoin, sounds like a weaponized modification of Vitamin A.

"Isotretinoin is available only from a certified pharmacy under a special program called iPLEDGE. You must be registered in the program and understand the risks and benefits of taking this medicine.

It is dangerous to try and purchase isotretinoin on the Internet or from vendors outside of the United States.

Isotretinoin in just a single dose can cause severe birth defects or death of a baby. Never use this medicine if you are pregnant or may become pregnant."


Newer treatments reported include tumor necrosis factor blockers (TNFB), quinolones, macrolide antibiotics, rifampin, alitretinoin, metronidazole, and high dose zinc sulphate (135-220 mg TID). Isotretinoin seems to provide the best chance at remission, but the number of reports is small, dosing schedules variable, and the long term follow up beyond a year is negligible; treatment failures have been reported. TNFB can succeed when isotretinoin fails, either as monotherapy, or as a bridge to aggressive surgical treatment, but long term data is lacking. Non-medical therapies noted in the last decade include: the 1064 nm laser, ALA-PDT, and modern external beam radiation therapy . Studies that span more than 1 year are lacking.


So is this an accurate depiction of what happens to the scalp of Morgellons sufferers? Post your assessment in the comment 


What to do immediately if you experience an episode of Morgellons Scalp?  

Discontinue all sugar, and carbs (including bread and pasta) for 3 days. Keep track of how you respond to this diet change. If there is improvement, it can rule out certain possibilities and shed light on what is causing your symptom and eliminate some possibilities.

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